Patient and User Participation in Supervision Working Group

WG Meeting on 16th April in Copenhagen, Denmark

At DPSA offices Islands Brygge 67 in connection with EPSO Spring conference (April 17-18th 2017)

Participants:

Lena Weilandt (Chair), Sweden; Tove Gemzell, Sweden; Hanne Sognstrup ,Denmark (NBSS);        Else Lund Frydensberg, Denmark (NBSS); Birgir Jakobsson, Iceland; Diana Dumina, Latvia; Charlotte Hjort, Denmark (DPSA); Torsten Larsen, Denmark (DPSA); Sorien Kleefstra, The Netherlands(IGZ); Paul Robben,

The Netherlands(IGZ); Renee Bouwman, The Netherlands (NIVEL); Bente Smedbråten, Norway; Hanna Ahonen, Finland;Riitta Aejmelaeus, Finland ; Jooske Vos, EPSO; Mari Murel, EPSO;

 Additional members in Reykjavik: Laura Scheving- Thorsteinsson , Iceland, Henrik Frostholm, Denmark
Alvaro de Moreira da Silva, Portugal, Cheew Bin tee, Singapore,Carmen Buttigieg, Malta.

WG Meeting on 27th September 2017 in Reykjavik, Iceland

At Embætti landlæknis (The Directorate of Health ) offices, Barónsstíg 47, 101 Reykjavík. 

Presentation

By WG Chair Lena Weilandt

WG Meeting on 24th April 2017 in London, England

Presentation

By WG Chair Lena Weilandt

By Chris Day, Director of Communications – CQC

Input from Denmark, Socialstyrelsen – Henrik Frostholm

Member interviews with 11 participants from different European inspectatorates 

Member access only, please contact the EPSO secretary for access. 

Interview format

WG Meeting on 28th September 2016 in Stockholm, Sweden

Hosted by IVO, Swedish Health and Social Care Inspectorate

Visit conference page

Participants: Lena Weilandt (Chair), Sweden; Tove Gemzell, Sweden; Hanne Sognstrup ,Denmark (NBSS);        Else Lund Frydensberg, Denmark (NBSS); Birgir Jakobsson, Iceland; Diana Dumina, Latvia; Charlotte Hjort, Denmark (DPSA); Torsten Larsen, Denmark (DPSA); Sorien Kleefstra, The Netherlands(IGZ); Paul Robben,

The Netherlands(IGZ); Renee Bouwman, The Netherlands (NIVEL); Bente Smedbråten, Norway; Hanna Ahonen, Finland;Riitta Aejmelaeus, Finland ; Jooske Vos, EPSO; Mari Murel, EPSO;

Meeting agenda:

1. Formal start of the working group based on the invitation from Lena Weilandt to those delegates who have expressed their interest in the working group in Kosovo or afterwards (chair Lena Weilandt, Sweden);
2. Introductory round by the participants of the working group. Please be prepared to present the recent developments in your country;
3. Discussion of key issues, thoughts and questions;
4. Round up, next steps and commitments.

Background

Many countries have the views and perspectives of patients and users as a central part in their policies and strategies for supervision. Some countries have put this into action by having patients and users as active partners in the supervisory activities.

Objectives

• Develop a network to identify ongoing projects and methods for patient and user participation
• Share knowledge, experiences and evaluations of the different methods
• Identify and support ongoing research.

Suggested forms for cooperation

• Chair of the working group Health and Social Care Inspectorate, Sweden
• Initially one or two physical meetings to identify specific goals of the network based on the expectations of the participants.
• The main channels for discussions and exchange of information will be by mail and through EPSO web.

Presentation

By Lena Weilandt

Meeting memos

Patient user involvement by Lena Weilandt

Overview pre-meeting questionary results

Additional information

Kleefstra et al. 2016: Investigating thePotentialContribution of Patient Rating Sites to Hospital Super vision: Exploratory Results From an Interview Study in the Netherlands.

Previous activities

Click here to open the report of user participation. This report was published in the Brussels conference in 2013.